Meet the WPC 2019 Buddies Coordinators

 


Deanna Krywy (Canada): Deanna’s goal in life is to enjoy every day no matter what it may bring while never having boring hair! Deanna was diagnosed with Parkinson’s disease at 50 years of age. It turned life upside down for this mom and fitness nut but in doing so also created great unexpected opportunities. Ice hockey, field lacrosse and rowing were her passions and were hard to give up, but Deanna now spends her time traveling, volunteering and taking Latin dance lessons. Since being diagnosed, Deanna has zip lined in Costa Rica, bungy jumped on Vancouver Island, tried scuba diving in Curacao and taken surfing lessons in Barbados.

Her past professional life includes a variety of interesting positions including stints as a dog catcher, private investigator, travel agent and mystery shopper, ending with 20 years in various administrative roles within the Provincial Government of British Columbia in Canada.

Deanna has two adult sons and a core group of special friends that keep her busy enjoying life. She has recently moved back to Victoria, British Columbia, after spending seven winters in Barbados where she started a Parkinson’s Support Group.

Deanna was a buddy participant for the WPC 2013 and describes her buddy as “a sister from another mother”! Deanna was a Buddy Coordinator for the WPC 2016 in Portland Oregon and enjoyed matching the Buddies and meeting many of them at the Congress.

Robert Davis (Canada): Robert was diagnosed with Parkinson’s Disease in January 2008. He has been the City of Toronto’s Supervisor of Public Consultation since 1992 and has been on long term disability since December 2010. As Supervisor he managed 14 full time staff who ran almost 300 public events per year for a range of City divisions including solid waste, water, planning the Toronto Transit Commission and transportation services. Robert also spent two secondments doing special work in 2004-05 running the Metropolis Immigration Settlement Conference and in 2009 developing and implementing Social Media protocols for City Clerks.

Robert has been married to music teacher Cheryl Hauser for 33 years who has provided amazing support as the disease has progressed and when, in the fall of 2017 Robert had the Deep Brain Stimulation surgery at the impressive Toronto Western Hospital. The surgery has mitigated some of the symptoms of Parkinson’s. Cheryl and Robert have one daughter who is currently enrolled at the University of Toronto.

June Ritar (Australia): Parkinson's has had a profound impact on my life since my diagnosis in 2007. It has made me aware of my mortality and the need to leave happy memories to my children, grand-children and great grand-children. I am determined to be there in the important times in their lives, participating, celebrating and enjoying.

To achieve this I stay active and exercise to maintain my mobility, peddling for 45 minutes on the exercise bike four days per week, attending Yoga classes twice each week and walking where possible. I eat a balanced diet and exercise my brain with reading, crosswords, Scrabble, Mahjong and cards. Fine motor skills are exercised by stamp and coin collecting.

I have been involved with Mid-Western Parkinson's Support Group since its inception in 2010 holding several leadership positions and organizing fundraising events. This year our small group of eight active members raised over $2000 for Parkinson's NSW

My motto is to do what I can, while I can. My husband, Karl supports and encourages me 100%. We attend seminars in Australia and overseas including the WPC in Montreal in 2013, Portland, Oregon in 2016 and Kyoto, Japan in 2019. I applied to have a Buddy in Portland and this enhanced the WPC experience. My Buddy and I were well matched, having both been teachers, of similar age, married with children and grand-children. We clicked immediately when we met, spent time together prior to the WPC and have many happy memories, reinforced by photos, of the time we spent together. We stay in touch. Because of PD I have a new friend. I encourage those going to Kyoto to apply to have a Buddy. Having PD has reinforced my decision to think positively.

 


 

 


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WPC 2019

  • 概要 - 日本語
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    (議会について)
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