Clinical Research Village

World Parkinson Congress with Michael J Fox Foundation,

Parkinson’s Foundation, Parkinson’s UK, The Cure Parkinson’s Trust

and Parkinson’s Movement

Present

The WPC Clinical Research Village


Join us at the Clinical Research Village in the Exhibit Hall each day over lunch and on Wednesday and Thursday evening for panels looking at the clinical trial process. Panelists will include clinical trials participants, senior investigators, coordinators and others.

Learn about your rights as a clinical trial participants, why you should participants, and what you should know before you sign on the dotted line.

Made possible with support from the Michael J Fox Foundation for Parkinson’s Research and in-kind support from The Cure Parkinson’s Trust.


June 4th

7.15 – 9.15 pm

Reception following the Opening Ceremony

Hear from your Peers: Fellow members of the Parkinson’s community available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

June 5th

Open from 11.30 am

Hear from your Peers:  Fellow members of the Parkinson’s community available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

12.00 – 1.00 pm

East Meets West understanding the differences of carrying out research in different territories (hosted by Parkinson’s UK and the Parkinson’s Foundation)

Hear from your Peers:Fellow members of the Parkinson’s community available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

3.00 – 3.30 pm

Two short films about research: Tom’s Advocacy Pyramid & iPSC Trial

5.30 – 6.30 pm

Patient Involvement in Practice Panel discussion featuring a case study of a clinical trial:

  • Understanding how PwPs help shape a research project
  • What was involved, what would they do differently?
  • What changed as a result of patient engagement?
  • How can others implement patient involvement effectively into their proposals and what’s the benefit?
  • How does patient involvement help communication around a project?

June 6th

Open from 11.30 am

Hear from your Peers:Fellow members of the Parkinson’s community available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

12.00 – 1.00 pm

Common Concerns and Myths about Research Participation Dispelled
Participation in research may seem scary or overwhelming. Learn answers to common questions about participating in research and understand the different ways people can get involved. (hosted by MJFF and CPT)

  • What the difference between an observational study and a study that tests a drug/therapy?
  • There is a research opportunity for almost everyone who is interested, regardless of stage of disease or geographic, mobility or other challenges
  • Why are genetics important? How can I get involved?
  • How to act as an advocate for research and spread the word in your community

1.00 pm - 3.00 pm

Hear from your peers: Advocates available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

3.00 – 3.30 pm

Two short films about research e.g. Taking part in research MJFF

https://www.michaeljfox.org/get-involved/participantpack.html

5.30 – 6.30 pm

Patient Involvement in Practice Panel discussion featuring a case study of a clinical trial:

  • Understanding how PwPs help shape a research project
  • What was involved, what would they do differently?
  • What changed as a result of patient engagement?
  • How can others implement patient involvement effectively into their proposals and what’s the benefit?
  • How does patient involvement help communication in a project?

June 7th

Open from 11.30 am

Hear from your Peers: Advocates available through the duration of the conference to answer your questions around taking part in research, patient involvement in designing research

12.00 – 1.00 pm

Session theme to be defined


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WPC 2019

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